Action Hero Survivors  :  Patsy Hinson, Advocate

Telling it like it is . . .Patsy Hinson Photo

I love to travel and have fun! I also am a volunteer foster mom for rescued Boston Terriers and enjoy helping dogs find their forever homes. I was diagnosed with advanced ovarian cancer in 2006 and had a recurrence of this cancer in 2009. Following my diagnosis, I pursued genetic testing and learned I was also positive for the BRCA2 genetic mutation. Unfortunately, my daughter also tested positive. My belief is that the most difficult part of living in the “cancer world” is the emotional stress experienced; therefore, I write a blog that “tells it like it is.” I hope through this forum survivors have a place to share the fears and struggles of dealing with cancer.  Click here to read Patsy’s blog.

My advocacy work also includes organizing the first support group for gynecological cancer survivors in my city, which allows women who understand the challenges of treatment and survivorship to come together and support each other, a place to say what’s on our minds and hearts without worrying that we are causing others to worry about us more. I also coordinate the Survivors Teaching Students: Saving Women’s Lives Program (speaking to medical students) and I organized a Coalition of Ovarian Cancer (an interagency group). I have enrolled in clinical trials continuously since my diagnosis in 2006 and believe we need more survivors volunteering in the area of research advocacy.

I am passionate about encouraging other survivors to look for ways they can best advocate for a cure and to be sure to take time to have fun!!

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